OUR STORY
Founded to Bridge the Diagnostic Gap
The Complex Care Foundation was established to address the challenges faced by individuals with complex and underdiagnosed medical conditions. Through firsthand experience, we recognized how gaps in awareness, understanding, and coordination can lead to prolonged and uncertain paths to diagnosis.
Without a more connected approach, many individuals are left navigating a fragmented healthcare landscape without clear direction or support.
Our work focuses on improving recognition and diagnosis through education, research, and the integration of lived experience. By bringing these elements together, we aim to support more informed, responsive approaches to complex care.
Meet Our Team
United by a shared commitment to advancing care for complex and underdiagnosed conditions.
Brittany Jež
Jiří Jež
Kim
Executive Director
Editorial Lead
Administrative Coordinator
What Informs Our Work
Perspectives and Research
A Personal Perspective
In this discussion, Brittany shares her experience navigating the diagnostic journey and the challenges that arise from gaps in awareness and communication within healthcare.
Research on Diagnostic Delays
This research, conducted by Brittany, examines diagnostic delays and provider awareness in hypermobile Ehlers-Danlos syndrome, offering insight into patterns that contribute to prolonged time to diagnosis.
Presented at the Ehlers-Danlos Society's Precision Medicine for Genetically Defined Types of Ehlers-Danlos Syndrome (Belgium, 2026).
Ongoing Work
Additional research and initiatives are in development to further explore gaps in diagnosis and improve understanding of complex conditions.
Our work is shaped by both research and lived experience. By exploring patterns in the diagnostic journey and learning from real-world perspectives, we aim to better understand where gaps exist and how they can be addressed.
This combined approach helps guide our initiatives, ensuring they are grounded in both evidence and the realities faced by individuals navigating complex and underdiagnosed conditions.